2. Bulk Curling Ribbon. The white complimented mine best, but they have so many colors. Gold or silver would be really pretty too.
balancing being chronically ill with being yourself. where does one end and the other begin?
Monday, November 14, 2011
Holiday Cheer... for CHEAP
2. Bulk Curling Ribbon. The white complimented mine best, but they have so many colors. Gold or silver would be really pretty too.
Tuesday, November 1, 2011
A Filling Autumn Meal is Already in Your Pantry!
Tuesday, September 13, 2011
Your Best Morning
Instead of buying a box of your favorite sugary cereal this week, why not make your own in a matter of minutes? You can control the ingredients and cut out so much sugar, ensuring that not only is it composed of YOUR favorite stuff, it's actually GOOD for you too! Here's what I'm eating for breakfast this week along with my milk. It would be great with dried cherries, slivered coconut, even white chocolate chips (yum!). The combinations are totally yours!
Sunday, September 11, 2011
Ten Years Later
"I think of 9/11 all the time. I want to always remember the awful feeling of that day. To forget would dishonor those who died." - Former CIA Official
Friday, September 9, 2011
Living the Sweet Life
Thursday, September 1, 2011
Healing in Every Form and Fashion
Thursday, August 25, 2011
Another Step to Normalcy
Today is only my 9th day home from the hospital! I woke up this morning in a super amount of pain. In the morning, I seem to always need painkillers. But other than that, I'm pretty much pain free! Less than 3 weeks out of my transplant, I corrected one of the problems that has plagued me since my blood clot in October. Because of medications, stress, and illness, my hair has been falling out and causing me grief for such a long time. Today, I got extensions put in to help fill in all the hair I lost. I'm so happy with the results! Looking healthy is one of the keys to feeling healthy and I'm glad to say I'm looking (and feeling) better with every passing day! It's such a great thing to finally feel like a normal person again so quickly after surgery! The necklace is courtesy of my niece, Bella, by the way. :)
Friday, August 19, 2011
Saturday, July 23, 2011
Gratuitous Eyelash Update
Wednesday, July 20, 2011
Stir Crazy
Tuesday, July 19, 2011
Best Hospital in San Antonio
Saturday, July 16, 2011
Monday, July 11, 2011
living in slow motion
Wednesday, July 6, 2011
Silence
Friday, July 1, 2011
Hello all.
This is Amy, Mary’s sister. Mary is continuing to make incredible progress just as we all expected. In the past four days, she has passed multiple trials on the ventilator and is gradually requiring less and less assistance from it. The goal would be for her to be completely off of it sometime soon. She is being discharged from the hospital today and moving to Life Care Rehab Facility to continue her recovery process. There she will build up her strength and endurance before eventually going home.
Mary’s pulmonary team has presented her with the opportunity for another lung transplant. This is something that we have known was possibly coming at some point in this journey. She has done remarkably well with the lungs she has had and beaten all of the odds up until this point. But, here we are now and she is ready to take on the next challenge. She has been placed on the top of the transplant list for matching lungs. What does this mean? It means that her new lungs and the opportunity to get back to enjoying life and doing all of the things she loves again are right around the corner. We have been advised that being on the top of the list generally requires approximately a 3 month wait; however, we are prepared for whatever timing God has in mind, as only He really knows.
Retransplantation is an option offered to people like Mary who have taken exceptional care of themselves and proven to be strong and otherwise healthy candidates. Here are a few facts about lung transplantation:
Recovery After Lung Transplantation
Immediately after surgery, lung transplant patients recover for two to four days in the Cardiothoracic Intensive Care Unit. During this time patients are likely to:
• require the assistance of a ventilator for a day
• receive pain medications, immunosuppressant medications, antibiotics, and other medications per the Lung Transplant Program's protocol
Patients are transferred to the transplant unit when they are ready, where daily physical and pulmonary therapy will begin. Recent advancements in anesthesia, surgical techniques, and post-operative care have dramatically shortened the time patients spend in the hospital to approximately 14 days.
After Leaving the Hospital
Once they return home, patients are encouraged to return to normal activities to the extent that their energy levels permit and resume outpatient pulmonary rehabilitation as soon as possible. They return to the Center weekly for diagnostic testing and medical care, and will need to adjust to the lifestyle changes associated with organ transplantation. After three months, checkups at the Center will be scheduled monthly as long as the patient's condition allows less frequent visits.
Organ transplant recipients must take immunosuppressant and antimicrobial medications for the rest of their lives. The side effects associated with these medications can be wide ranging, but they can be managed.
As you know, most of this is not new to Mary, but I figured it was good information. Thank you for your continued prayers and support during this journey. We will continue to keep you posted. As a matter of fact, I look forward to her next post because she has a lot more interesting and humorous things to say than I do. :)
Sunday, June 26, 2011
the expected, unexpectedly
Thursday, June 2, 2011
Quote of the Day
Tuesday, May 31, 2011
Thank You!
Thursday, May 19, 2011
The Cost of Survival
Wednesday, May 18, 2011
Jerky to Save Lives!
I have been blessed to be able to travel across the country and get the most advanced treatments and expert advice throughout my life. However, there are many people who are not as fortunate as I have been.
The American Organ Transplant Association is a wonderful charity out of Houston, TX that helps arrange free transportation for patients to get to the best hospitals for transplant evaluations, surgery, and aftercare. They also help patients save money on prescription medications which can be thousands of dollars a month without insurance, along with promoting organ, marrow, and tissue donation to the public.
To help raise money during this time when I am unable to be in school, I am making homemade beef jerky to sell to you all! 100% of any profits or donations will be given to AOTA. For $5, you can order a bag of beef jerky for your summer road trip, fishing excursion, or late night snack craving! Orders can be shipped for an extra $2!
You can pay me via cash, check, or even via text through Venmo (it's super easy)!
Contact me through phone, facebook, or just stop by if you're hungry for jerky or wanting to make a donation! I'm back and forth between San Antonio and Austin and want everyone who's interested in helping to be able to!
Everyone in my family can attest that this jerky is amazing (it's a secret family recipe!) and I can promise you'll be making the lives of transplant patients better! Thanks for reading all this!
Remember: BEFF JERKY:$5. Satisfy your taste-buds and help save a life!!!
Check out AOTA online for more information on them! http://aotaonline.org/default.aspx
Mary Katherine Burkholder
210 383 5546
910 W. 25th St. Apt. #310
Austin, TX 78705
Continuing Education
Monday, May 16, 2011
Treatments and Living Life
I'm into week 3 of my photopheresis treatments. I'm finally settling into the routine and what to expect. Every Monday and Tuesday, I arrive at Main Methodist Hospital in San Antonio and head to the 10th floor Apheresis room.
Wednesday, May 11, 2011
Keeping Up Appearances
Monday, May 9, 2011
We Got Him
Number of NYPD officers: 23
Number of Port Authority police officers: 37
Number of WTC companies that lost people: 60
Number of employees who died in Tower One: 1,402
Number of employees who died in Tower Two: 614
Number of employees lost at Cantor Fitzgerald: 658
Number of U.S. troops killed in Operation Enduring Freedom: 22
Number of nations whose citizens were killed in attacks: 115
Ratio of men to women who died: 3:1
Age of the greatest number who died: between 35 and 39
Bodies found "intact": 289
Body parts found: 19,858
Number of families who got no remains: 1,717
To those of you who remember that day, I'm sure you can't erase the images of people jumping from the 90th floor of the World Trade Center rather than be incinerated by the flames engulfing the towers. You probably remember the phone calls played from passengers on United flight 93 to loved ones. It was a day that was truly scarring for every American who was glued to the TV, watching these events unfold. The "mastermind" behind these attacks was a name few of us were very familiar with: Osama Bin Laden, who had previously been quoted as saying: Allah has ordered us to glorify the truth and to defend Muslim land, especially the Arab peninsula ... against the unbelievers. After World War II, the Americans grew more unfair and more oppressive towards people in general and Muslims in particular. ... The Americans started it and retaliation and punishment should be carried out following the principle of reciprocity, especially when women and children are involved.
he has become my salvation.
He is my God, and I will praise him,
my father’s God, and I will exalt him.
3 The LORD is a warrior;
the LORD is his name.
4 Pharaoh’s chariots and his army
he has hurled into the sea.
The best of Pharaoh’s officers
are drowned in the Red Sea.
5 The deep waters have covered them;
they sank to the depths like a stone.
6 Your right hand, LORD,
was majestic in power.
Your right hand, LORD,
shattered the enemy."
Wednesday, May 4, 2011
Never Take Yourself too Seriously
“Laugh at yourself and at life. Not in the spirit of derision or whining self-pity, but as a remedy, a miracle drug, that will ease your pain, cure your depression, and help you to put in perspective that seemingly terrible defeat and worry with laughter at your predicaments, thus freeing your mind to think clearly toward the solution that is certain to come. Never take yourself too seriously" - OG Mandino
Tuesday, May 3, 2011
A Shot to the Heart
I had my first photopheresis treatment today. The flying to Kansas City, the port placement, and the recovery seemed to be the worst of it. Then there was the waiting. A group aphaeresis experts had to coordinate their schedules and come in from Chicago, Phoenix, and Round Rock to oversee my first treatment. I showed you in an earlier post what the port looks like. Well here's what the port looks like in me. I circled it, because the port is actually pretty easy to miss. It's been a blessing how inconspicuous my little Toto (thanks Kyle!) looks, and cosmetically, I couldn't be happier with the results. But now it was time to put Toto to work.