And in all this frustration, I have some inspiration from a very unlikely source. Elizabeth Edwards is not someone I have a lot in common with. We have very different opinions on almost everything. However, she too, has been suffering with a critical illness. Today, she posted this on her Facebook page:
"The days of our lives, for all of us, are numbered. We know that. And yes, there are certainly times when we aren't able to muster as much strength and patience as we would like. It's called being human. But I have found that in the simple act of living with hope, and in the daily effort to have a positive impact in the world, the days I do have are made all the more meaningful and precious. And for that I am grateful."
So as I continue to struggle and suffer with my disease, I am reminded to live with hope and not be discouraged in the coming days, however many there are left for me. If a woman who has suffered this much can utter these words, surely I can try to live it out.